KVN Forum Meeting 7th October 2008

Compiled by
CD
Attendees:12
Apologies: 3

The next ordinary meeting of the Forum will be held at the Kobler Clinic, Tuesday 4th November 2008 on the 4th Floor of the St Stephens Centre, from 6:00pm to 8:00pm.

This document is a collection of the discussions held by the KVN Forum members at the October meeting of the KVN Forum, which took place on 7th at the Kobler Clinic. These are not strictly minutes of the meeting, but most of the points were loosely captured – apologies for any points missed or any irregularities in the comments. Many thanks to those who participated in the discussion, and thanks also to those who have contributed through the online forum.

  • CW raised the issue that the Forum needs to register as a ‘Patient Partnership Group’. The issue has come up before and requires some action by the executive to gather the correct documentation and publish to website and local public health authorities and councils. CW has given hardcopies to the Chair – JOCW has also forward similar documentation – these will be used as templates for the Forum’s documents.
  • HIV age (Research on Older Adults living with HIV): report from RW was presented with Sundhiya Mandalia in attendance. RW covered the following:
    • Work so far – enormous body of work has been achieved – the survey instrument has all but been prepared. Excellent work done by the research teams. The Forum has agreed to work with Chelwest R&D, who will take place as Project Sponsors. This then covers all project work in terms of insurance and provides legal and ethical governance of all systems at all stages of the project lifecycle.
    • Proposal – RW gave a presentation of the document itself – outlining details and format – led to the discussion about the Forum name.
    • Survey Instrument / In-depth interviews – more detail given about the instrument itself and the plan for the surveys – a team of recruiters will be needed – they will under Training (provided by the Trust) before undertaking any Surveys of patients. Patients will be given consent forms on arrival to the clinics and these must be signed before they will be considered to complete the survey. Gareth will be selecting the qualitative subjects and these will be surveyed separately from the 50 pilot patient sample.
    • Budget – JOCW presented the budget plans and discussed the need for formalisation of the Forum Structure. Once established, he will require documentation (a letter signed by the Chairman) authorising all searches for and discussions around Funding. Initial budget estimates set at approx £60K.
    • Project Plan – it has been agreed that this will be required for purposes of strategic planning and funding proposals. AOC will forward the plan to date and the Chair will compile into MS Project and return to the research team as a guideline for milestones and task planning.
    • Immediate Work to do – need to recruit 10 ‘recruiters’, need to take advice on Forum position on printing / IPR / agreement letter, meet with Dr Julie Reed to discuss format & content of Agreement letter between ChelWest Research & Development team.
  • An important issue discussed and agreed by the present members of the Forum was that of the name of the Forum. It was an emotive issue, with an urgent need to resolve the issue pressing for agreement by majority vote. It was finally agreed to opt for a generic title that would not associate directly with the Trust, nor need to be changed as with the Victoria Clinic’s move to Dean Street. The name “Frontline HIV Forum” was proposed, and duly voted for by majority – one dissention. PD has subsequently purchased the web / domain names and will begin re-referencing the website and associated links, and RW can / will add to the ‘HIV age’ proposal and all communications from this point forward.
  • All other Agenda items (following) will be forwarded to next month’s meeting.
    • Victoria Clinic move – report from PD / JS / JOC
    • Treatment 101’ – On target for November – check that flyers /posters in place
    • Missing memory stick – update from the Chair on meetings with Heather Lawrence and subsequent draft report.
    • ICASO Board of Directors: Call for Applications - www.icaso.org

Please forward all points/suggestions for next meeting to the online forum, or directly to CD at chair@kvnforum.net and the Agenda will be posted to the online Forum, with any additional points added to it as they are sent in.

The meeting dates for the Year 2008 are as follows:

  • Tuesday 4th November
  • Tuesday 2nd December

The meeting dates for the first half of 2009 are as follows:

  • Tuesday 6th January
  • Tuesday 3rd February
  • Tuesday 3rd March
  • Tuesday 7th April
  • Tuesday 5th May
  • Tuesday 2nd June

The next meeting of the KVN Forum will be held at:

The Kobler Clinic
4th Floor,
St Stephens Centre
Chelsea and Westminster Hospital

6:00pm to 8:00pm

Refreshments provided.